Days 3 & 4

Wednesday / Day 3:

We got up and headed to St. Mary's Hospital for Addy's procedures. She was having a triple scope (pulmonary, ENT, GI), a chest CT, lab work done, and two biopsies.

We were told to be there at 8:15, and the procedure would start at 9:15. So we got Addy changed into her super-cool Dr. gear to get the show started.

They took this picture of us before we headed downstairs to CT waiting. I love it. So thankful they do things like this.

Dr. Addy is ready to go! 

Unfortunately, the procedure before hers hit some snags, which left us waiting and waiting and waiting... Like 1 1/2 hours waiting. And she was hungry. Everyone knows

Addy LOVES to eat. She wakes up 'so hungy' and asking for food. So waiting until 10:40 to get started was HARD.

Finally, they got her back. They asked which one of us wanted to walk her into the CT room and stay with her while she went to sleep. Obviously, I can't stand not

 being with her (sorry Daddy) so I went. 

Oh. my. goodness. 

That was so hard. Watching her be so scared while they held the mask on her face was 

hard and extremely emotional for me. She held my hand really tight until she was asleep.

They let me kiss her before I was escorted out, a blubbering mess.

David wasn't sure what happened when I got back to the waiting room, because he couldn't understand what I was saying. Mostly, I never want to have to do that again.

We waited for about 2 hours before we got to meet with the Drs. They placed the impedance probe in and told us that they would feel more comfortable with us staying overnight for observation rather than staying in our hotel. Then we returned to the waiting room for about 30 more minutes until she was in recovery and we could go back.

 The top two pictures are recovery room pictures.

The bottom two are in the room we stayed in for the night. She did not move for a good 6-7 hours. We tried everything to wake her up.

At one point, she sat straight up and said "I wanna get up!!!!" and then flopped back down. It was about 4 more hours until she actually got up.

Overall, she did great with the probe. She woke up finally around 9 pm and went back to bed at 11:30. They woke us up around 8 to get some vitals. So we did get a decent night of sleep, although sleeping on cots and a couch that feels like concrete are not great for comfort :)

Watching Frozen for the 1,0000,0000,000 time

 

 

 

On Thursday, we were discharged from the hospital right at noon. We had to go straight to the other main building for a 12:30 sweat chloride test (Cystic Fibrosis).

During the CF test - they had sterile gauze under all that wrapping to collect her sweat. She HATED it.

 That test took an hour and a half, so we were finishing up right at 2. We had a 2:00 appt with an allergist/immunologist so David left the testing room early and went to check us in for that appt. When we got there, they were calling us back. That appointment took 2 hours!

 Whew, we were exhausted. 

By the time we got back to the hotel, we had about an hour and a half to eat, repack a bag, and leave for the sleep study. Addy and I headed back downtown leaving David at the hotel with a nice, comfy bed with big fluffy pillows sad and alone. :) 

When we got there, they were playing classical music and Addy decided to do a ballet performance for the other people waiting for their sleep study. 

Hilarious. Words cannot express how funny it was. I think at this point she had hit delirium?! She would usually get really embarrassed, but she just kept going even when she noticed people watching her.

Part of her performance :)

My little robot

It was another long night, but we got a lot of information from her sleep study. So it was worth it! The next post will have the diagnosis and info we were given today!